Family Assessment Tool: Interview Schedule for Understanding the Impact of Chronic Illness on the Patient

A great tool to interview an adult individual having Chronic Illness to understand the stressors, strains/hardships, support, etc, faced by him/her.

Interview Schedule: Understanding Impact of Chronic Illness

Briefly describe the chronic illness that you’re living with. How long have you been diagnosed with it?
How was the onset: gradual or acute?
What’s the course of your illness: progressive, relapsing, remitting, or stable?
What all symptoms are part of your illness? Do they cause any kind of handicap?

Can you describe your initial emotions and reactions upon receiving the diagnosis?
How has this illness impacted your daily life?
Have you made any lifestyle changes/adaptations in response to your chronic illness, such as dietary modifications or changes in physical activity?
How have your relationships with family members, friends, or romantic partners been influenced by your chronic illness?
How has your chronic illness impacted your ability to work, pursue education, or engage in other activities and responsibilities?
How has this illness affected your overall sense of psychological well-being and self-esteem?
Have you faced any emotional challenges (depression, anxiety, low self-esteem) related to the illness?

Have you encountered any barriers or challenges in getting treatment for your illness - accessing healthcare services, treatment options, or support resources for managing your chronic illness due to financial or other reasons? If yes: Please elaborate.
What are the biggest challenges (stressors/strains/hardships) you have encountered as a result of your illness? How have you addressed or managed these challenges?
Can you discuss any financial challenges or concerns you have encountered as a result of your chronic illness, such as medical expenses or loss of income?
Can you discuss any challenges or adjustments you have experienced in maintaining social connections and support networks while managing your chronic illness?
Have you encountered any instances of stigma or discrimination from others due to your chronic illness? How do you respond to these experiences?

What sources of support, whether from family, friends, healthcare providers, have been most beneficial to you in coping with your illness? Do you feel supported and understood by the people close to you?
Have you participated in any support groups or counselling services to address the emotional impact of living with a chronic illness? If yes: Please elaborate. Did it help?
Do you have financial wherewithal or support to help with the medical and other expenses, if required?
Have you found any online resources or communities helpful in managing your illness?

Have you been able to cope with the challenges associated with managing your chronic illness on a day-to-day basis? If yes: Please elaborate. What activities, strategies or techniques that have been helpful in managing stress, anxiety, or other emotional reactions related to your chronic illness?
How do you prioritize self-care amidst the demands of managing your chronic illness?
What role does spirituality or religion play in your life, if any?
What helps you in finding meaning and maintaining a sense of hope and purpose - optimism and resilience in facing the uncertainties and setbacks that your illness may bring?
Has living with a chronic illness influenced your perspective on life, relationships, and personal goals? If yes: Please elaborate.
What are your biggest fears and concerns about managing your illness in the long term?
Can you discuss any positive aspects or personal growth you have experienced as a result of navigating the challenges of your chronic illness?
What are your hopes and aspirations for the future, and how do you envision managing your chronic illness within the context of your personal goals?

What advice would you offer to other patients or caregivers who may be facing similar challenges and experiences due to chronic illness?

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